New ‘Guide to living with Sickle Cell Disorder’ launched by the Red Cell Network

Happy World Sickle Cell Awareness Day 2024! It is with great pleasure and excitement that we share with you news of an excellent new resource that can be used across the UK for people living with Sickle Cell Disorder.  

A new comprehensive guide has been launched to support individuals living with Sickle Cell Disorder (SCD) in the UK. This invaluable resource aims to help patients, healthcare professionals, and caregivers understand and navigate the complexities of the condition, providing essential information and practical advice. 

The guide is designed to be a one-stop-shop for everything related to SCD, offering insights on managing symptoms, accessing treatment, and finding support. It includes basic information as well as links to additional resources for those seeking more in-depth knowledge on specific topics. 

In this guide you will find information on everything from managing symptoms and accessing treatment to useful tips on preparing for travel and accessing welfare support.  

How to access the guide: 

The guide is available on The Red Cell Network’s Patient Hub and is available as accessible web content or a downloadable PDF. It contains numerous hyperlinks directing users to specialist resources that delve deeper into each subject area. 

We urge patients, healthcare professionals, and caregivers across the UK to take advantage of this comprehensive guide. By spreading awareness and utilising the resource we can ensure that individuals with SCD are supported to receive the support and care they need and deserve.