All-Party Parliamentary Group on Sickle Cell and Thalassaemia

Report published today following inquiry into avoidable deaths and failures of care for sickle cell patients.

An All-Party Parliamentary Group (APPG) inquiry report published today highlights shocking failures as cross-party MPs call for major changes into care for sickle cell patients.

The groundbreaking inquiry, led by Rt Hon Pat McFadden MP, Chair of the APPG on Sickle Cell and Thalassaemia, has found “serious care failings” in acute services and evidence of attitudes underpinned by racism. As of 2022, the APPG has been led by Rt Hon Janet Daby MP.

The ‘No One’s Listening’ report, which is based on the inquiry’s findings, is jointly published by the APPG on Sickle Cell and Thalassaemia and the Sickle Cell Society, a national charity that supports and represents people affected by sickle cell disorders.

Download the full report here: No One’s Listening – A Report (PDF)