Myeloproliferative neoplasms (MPN) : University College London Hospitals NHS Foundation Trust

The UCLH myeloproliferative neoplasms (MPN) service is one of the largest specialised MPN services in the UK and provides comprehensive, holistic care for people with all types of MPN, including essential thrombocythaemia, polycythaemia vera, myelofibrosis, systemic mastocytosis, hypereosinophilia, and overlap conditions. We have a team of dedicated consultants, specialist nurses and research practitioners who are experts in these conditions and highly experienced in caring for people with MPN.

We provide a wide range of standard treatment approaches for MPN; many of our patients are also offered the opportunity to participate in a national or international clinical trial, which can provide access to novel and cutting-edge therapies. In addition, we work closely with the UCLH Haematopoietic Stem Cell Transplant service, which currently performs the largest number of transplants in the UK for myelofibrosis, as well as the UCLH Myelodysplastic Syndrome and Leukaemia teams, to ensure our patients receive the most up-to-date, personalised treatment available. We also have close ties to the UCL Cancer Institute, where we undertake MPN-related scientific research.

The MPN service benefits from ready access to UCLH’s state-of-the art in-house diagnostic laboratories, which provide a full range of analytical tests, including histopathology, flow cytometry and advanced genetic analysis, supported by several dedicated multi-disciplinary team (MDT) meetings. This comprehensive diagnostic capability, combined with a specialized imaging service, facilitates rapid and precise diagnosis of even the most complex cases.

Patients attending the UCLH MPN service are regularly reviewed in clinic, either in person or remotely, and are supported by a team of clinical nurse specialists who provide holistic care for all our patients. In addition, all patients can, if they wish, make use of the UCLH MyCare portal via their smartphone or computer which provides secure access to their blood results/medical record and easy, safe communication with the MPN team.

The MPN service includes polycythaemia vera, essential thrombocythaemia, myelofibrosis, systemic mastocytosis, hypereosinophilia and overlapping conditions.

The MPN clinical nurse specialists (CNSs) are senior nurses who specialise in the care of patients with Myeloproliferative Neoplasms. The nursing team provide support and information to newly diagnosed patients, and offer clinical information and advice throughout patient treatment and follow-up at UCLH. All newly diagnosed patients are given an information pack that introduces them to the hospital, and contains more detailed booklets about their diagnosis and where to access additional services.

There are a team of CNSs who care for our MPN patients: when first in clinic the patient will meet one of the specialist team who will answer their immediate concerns as well as providing key contact information. Patients receive support from all the MPN CNSs, who act as their advocates when needed and ensure their treatment programme is clearly communicated. Patients have access to a dedicated helpline. The MPN CNSs run telephone clinics to assess patients, manage treatment and allow patients more time to discuss any concerns.

Patient contact

- 020 3447 7359

General enquiries

- 020 3447 9443

Other contact information

For all general & GP enquires regarding myelodysplastic syndrome (MDS) please contact the MPN admin team on 0203 447 7101.

If you are a patient please call the Patient Telephone Line for all queries to your team: 0203 447 7359. Please note the line is open Monday to Friday, from 9am to 5pm.

Outside of the office hours listed above and for urgent medical advice only, patients may call the haematology ward: 07852 220 900.

Please note this line is for patients only – medical professionals should call the general enquiries line for any patient-related queries.

Address

Myeloproliferative neoplasms (MPN)
University College Hospital Macmillan Cancer Centre
Outpatient clinics and haematology daycare unit:
Ground Floor
Huntley Street
London WC1E 6AG

Inpatient wards: